Celebrating 15 Years of Victory Over Terminal Cancer Prognosis

This week, fifteen years ago, I faced a moment that profoundly disrupted the foundations of my life. What was anticipated to be a routine procedure, akin to a wisdom tooth extraction, unveiled a devastating reality: I was diagnosed with stage IVc ‘terminal’ cancer, a rare head and neck cancer known as carcinoma ex pleomorphic adenoma. The prognosis was grim, giving me merely 2-3 months to live. Yet, here I am, a testament to what can only be described as a miraculous healing that defies medical logic.

My journey through the valleys of surgeries, medical treatments, weekly chemotherapy, daily radiation, and a radical neck dissection was arduous and fraught with pain. But in these trials, I witnessed the awe-inspiring might of God’s healing hand. It’s challenging to express the extent of my thankfulness for the divine intervention that saved my life when everything appeared hopeless.

Many people have asked me how I overcame such daunting challenges. I firmly believe that the secret lies in embracing peace in every circumstance. My faith has taught me to find serenity and joy, whether in moments of ease or trials of disease. As Philippians 4:11-13 reminds us, “I don’t say this out of need, for I have learned to be content in whatever circumstances I find myself. I know how to make do with little, and I know how to make do with a lot. In any and all circumstances, I have learned the secret of being content—whether well-fed or hungry, whether in abundance or in need. I am able to do all things through him who strengthens me. Still, you did well by partnering with me in my hardship.”

My prayer for everyone reading this is that you, too, will discover the profound peace available to all of us through faith in Jesus. Despite the physical losses—muscles, glands, nerves, and lymph nodes—my body has continually healed and adapted, a process for which I am profoundly thankful. Each day is a gift, and I approach life with renewed vigor and appreciation.

I am deeply grateful for the support and encouragement from so many during this strange, terrifying, yet ultimately wonderful journey. Your love and support have been my stronghold, and I am truly blessed. To all who are facing their battles, know that there is hope, and with faith, love, and perseverance, you can press on. With all my heart, thank you. Love and press on, Rich & Nikki.
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PS: As a survivor of carcinoma ex pleomorphic adenoma stage IVc, I’ve learned about the broader landscape of cancer diagnoses in the United States. Each year, roughly 1.9 million people are newly diagnosed with cancer. Within this population, about 76,000 individuals, or 4%, are affected by head and neck cancers. Of those 5,320 people, or approximately 7%, have salivary gland tumors. A subset of these, around 192 patients or 3.6%, are diagnosed with carcinoma ex pleomorphic adenoma, the same rare cancer I battled. Unfortunately, specific data on stage IVc cases, like mine, remains unavailable.

731 Days – Cancer-free

Hey friends,

It’s been two-years today since my medical oncologist; Dr. Robbins told Lisa and me that I’m “100% cancer-free”. It’s still humbling, frustrating, unbelievable and thrilling. If this sounds like a broken-record, I’m glad. Cancer survivors don’t like drama.

April of this year, we had another faith-building moment of truth. A month prior, I discovered a significant lump in my neck, just left of my Adam’s apple (laryngeal prominence). My surgeon, Dr. Steiniger immediately sent me for a full-body PET-CT scan and consultation with my oncologists. They determined that it was non-cancerous (whew!), but it was growing and needed to come-out (oh crap!). On April 9th, I had an in-office surgical procedure to remove the mass, which was apparently a disturbed lymph node (for the record, I do not recommend having your neck cut open without anesthesia). A week later, the stitches came out. Thankfully the surgeon was able to use my existing scar for the incision. Overall, my energy-level and strength continues to improve.

The past 12 months have been incredibly active and fruitful. Last October, Lisa and I were able to attend the C12′s 2011 Leadership Conference in Orlando at the Gaylord Palms. I was asked to speak at a breakout session to their national audience, about the miraculous healing that I received from stage IV cancer, which is ironic since the left side of my face is paralyzed and talking in a clear manner is a challenge.

In November, we were finally able to adopt Tristan Isaiah, just after his 5th birthday! on a Sunday in December we celebrated his adoption into our family with a special service at our church, Riverside Baptist Church followed by a catered luncheon attended by the entire church, family and special friends. Here’s a video that we created that starts with the day we met Ty through his adoption day.

On February 1st, Lisa and I celebrated our 20th anniversary. Typically, most couples seem to make a big deal out of their 25th anniversary, and they should. Two years prior, when we were facing my “terminal diagnosis” we made our 20th anniversary a goal/milestone to achieve. I planned a vow renewal ceremony and reception at the Vinoy Renaissance Resort in St. Petersburg. In early March, we had the shindig and it was attended by our immediate family and friends. The next morning Lisa and I set-sail for an 8-day Caribbean cruise!

Our three sons Chandler, Mitchell and Tristan are back in school, high school junior, 8th grade and Kindergarten!

Thankfully, business at Digital Lightbridge continues to be blessed with many new and exciting organizations to serve, brand and guide towards success. In April, Digital Lightbridge celebrated its 11th anniversary and opened a second Marketing Showroom in Tampa.

Over the past four months, we have foster-parented about a dozen different children. Some of the kids simply spend the night with us after their parents’ arrest. A few have stayed with us for a few weeks until a relative makes accommodations for them. We have had the joy of having a brother and sister twice. Presently, we have a five-month old boy that we call Jack. He’s the product of a typical scenario; unwed biological mother on drugs, multiple half-siblings that are scattered about the country, an uninvolved, abusive biological father that is frequently incarcerated. Jack is a wonderful, happy, independent little boy that is currently and thankfully unaware of his circumstances. I look forward to taking him for a walk around our neighborhood tonight.

I have also begun to understand the opportunity that I have been given to share what I’ve learned about the particular disease that I had, stage IV carcinoma ex pleomorphic adenoma (CxPA) cancer. Recently, two celebrities (rapper Adam Yauch of the Beastie Boys and journalist Barbara Callahan) died after losing their battle with salivary gland cancer. Lisa and I have been led to start a foundation called CXPA Cancer Foundation. It’s goal is to distill and provide relevant information and encouragement to cancer patients and their caregivers.

Next week, my business partners and I are launching a national magazine called TwoTen. It is a simultaneous print and digital (web &  iPad) publication aimed to challenge business leaders to manage their organizations from a Christian perspective and improve their effectiveness.

Thank you to everyone who has encouraged me and my boys during this strange, horrible, wonderful and incredible journey.

Love and press on, Rich