Today, I had the first round of chemotherapy and second radiation treatment. We checked in at 8:45am for blood work, medical oncology consult with Dr. Robbins, then IVs and injections for 4.5 hours. Followed by radiation, which was much shorter and tolerable. Then, radiation oncologist consult. Dr. Hochman decided to only radiate the left side of my neck and face.
We discovered a few ministry opportunities today. Details to follow..
A patient brought everyone Klondike ice cream bars!
Lisa and I celebrated my appetite by getting sushi!
Please pray for a good friend, Miranda who is pregnant with twins. She has been hospitalized until the babies are born.
Thank you for everything and press on friends, Rich
Today, I received the first of forty radiation treatments. The staff at the Florida Cancer Institute are incredibly nice. The experience of being bolted to a narrow table by my face was… scary. This treatment was longer than the successive ones as they needed to shoot some x-rays and consult with medical oncologist. The technicians were pleased with the initial procedure.
Tomorrow, morning we start chemotherapy at 8:45am. It’s expected to last five to six hours. At 2:15pm, I receive the second radiation treatment.
Thanks for the prayer support. I appreciate the cards and notes of encouragement. I apologize for not being able to follow-up with everyone directly. You are a huge part of my care team. Thank you!
Here are a few photos that Lisa took today.
Press on dear friends, Rich
It’s been five weeks (yesterday) since I was first diagnosed with a very rare, Stage IV CxPA cancer. After three surgeries, CAT and PET scans, injections, blood draws and intravenous therapies, radiation preparation and a multitude of doctor consultations and oncology visits, Lisa and I are overwhelmed, over-informed and very thankful.
We have been incredibly blessed by the support and random acts of kindness to our family and company by our wonderful friends and business colleagues.
Through greeting cards, this Blog, Facebook, email and CaresPages (search richardhayes) website we have received many encouraging notes about our strong faith during this wild storm in our lives. Jesus said in Matthew 17:20 “He said to them, “Because of the littleness of your faith; for truly I say to you, if you have faith the size of a mustard seed, you will say to this mountain, ‘Move from here to there,’ and it will move; and nothing will be impossible to you.” Well, I haven’t moved any mountains yet, but my little faith has sustained me and given me great confidence to press on to whatever God has in-store for the balance of my life. I pray that its a long life, but none of us knows the hour, year or duration of this life.
Next week, I will begin intensive radiation therapy (5 days a week for 8 weeks) on my the left side of my face and both sides of my neck and chemotherapy (once a week (4-5 hours) for 8 weeks). The pathology and post-surgery reports were not what we were expecting.
We know that everybody has problems, difficulties and challenges and many are much greater than ours. I pray that many people come to know the Lord perhaps for the first time or more intimately due our story.
“For everyone who has been born of God overcomes the world. And this is the victory that has overcome the world—our faith.” 1 John 5:4
Press on! Love, Rich
Wow! Finally able to work a full week, albeit shorten hours. Fatigue and pain have lessened throughout the week.
Digital Lightbridge acquired new business and new ministry opportunities this week. Our friends at Cornerstone brought the entire staff a wonderful lunch on Thursday. We enjoyed their fellowship and warm hospitality.
I also received a UPS package of incredible books and cancer resources from former Major League Baseball player and author Dave Dravecky.
Our three sons had a great time on Spring Break at Green Key Beach, canoeing on the Chassahowitzka River, disc golf and movies with their grandparents and friends.
Next Tuesday, we visit with the oncologist and begin radiation on my face and neck. My scars are healing enough to begin the treatments and I’ve gained 9 pounds in anticipation of losing quite a bit of weight during the eights weeks of treatment. Ironically, next week (April 12-19, 2010) is Head & Neck Cancer Awareness Week. A month ago, I wouldn’t have cared or known that cancer that arises in the head or neck region is sixth-most-common form of cancer in the United States. If you discover a lump or bump, please get it checked out immediately.
Being an entrepreneur and employer for the past nine years, has typically allowed me to be in a position to give and provide. I truly enjoy serving and leading my staff, their families, clients and strategic partners. I have been overwhelmed with the generosity, compassion, acts of kindness, and selfless-love lavished upon me, my family and company since my diagnosis of Stage IV Carcinoma ex pleomorphic adenoma (CxPA). Receiving these blessings has increased my faith. Thank you dear friends for everything.
At the conclusion of my 31st day of surviving cancer, I am feel thankful and blessed.
Press on! Love, Rich
Yesterday, after working from early morning to noon, Lisa and Mitchell (he’s on Spring Break) took me to lunch, Chili’s. Afterward, we went to my doctor appointment. I had the eyebrow stitches from the March 29th eye surgery removed by my primary surgeon Dr. Steiniger. He also told us that he and Dr. Alidina remove 75 lymph nodes and additional tumor from my neck during the March 23th neck dissection surgery. The tumor and 10 of the lymph nodes were cancerous. The scars are healing very well and the cancer doesn’t appear to be outside of the face and neck. On Tuesday, April 13th we go back to the Florida Cancer Institute and meet with Dr. Hochman to begin radiation treatments. I believe they will first create the radiation mask. I will undergo 40 treatments over the course of 8 weeks, 5 days a week. The treatments should last about 30 minutes. Next week I also start physical therapy to regain full range of motion and feeling to my upper left arm, neck and shoulder. Still trying to gain weight in anticipation of losing weight during radiation.
Thank you again for the overwhelming, beautiful support and warm encouragement of our friends and family. Your prayers mean a lot during these strange times.
Great News! Yesterday, we were presented by the agency with the beginning of the adoption package for our foster son. The process is months, perhaps years away, but its great progress within this very slow and challenging system.
As we strive to walk closely with the Lord, I was reminded this morning in my quiet time that God goes before us, He stands beside and behind us to provide protection and comfort (Psalm 139:7-12). Even in the midst of bewildering circumstances, the Lord is there.
That give us confidence to press on.
Lisa posts updates from her perspective on www.CarePages.com, search for RichardHayes (no spaces).
Here is the latest from Rich!
Reflections on Easter
Wow! I’m glad March 2010 is over. I’m really looking forward to the balance of this year. Three quarters, nine action-packed months, 273 days, however we look at 2010, twenty-five percent of this year is gone. Time is a funny thing. Sometimes it seems slow, short, not enough or too much. Circumstances often effect my perspective on time. Recovering from these cancer surgeries has given me extra time to just think and reflect. Being still and patient is not easy for me (or most people I know).
As my family and I look forward to this year’s Easter celebration weekend, I’ve been thinking about God’s process of really glorifying Himself throughout the Old and New Testament. He creates a scenario that appears to be a death or a near-death experience to then reveal a miracle of life. Jonah and the whale, Abraham and Isaac (Genesis 22:12), Moses and the Red Sea and Lazarus (John 11:4) come to mind. Then the biggest miracle of all, God’s plan to save the entire world required His own son to die to pay for the sins of the whole world (Good Friday, Luke 23:46). Three days later, surprise, not dead, alive (Luke 24:6)! What appeared to be the end, death and tragedy, God turned into the most incredible demonstration of His love for all of His children (us, you and me).
So, what does this have to do with my cancer journey (Day 23)? Well, God has allowed part of me to die (facial nerves, neck muscles, lymph nodes, etc.). Some pride has been cut away and my perspective on the “future/time” is markedly different in a way that I could never have imagined without this cancer journey. These scars and paralysis will always remind me that God is absolutely in control of my plans and my every breath (and yours too dear friends).
As I continue to walk out this journey with fear and excitement, I hope to honor and please the Lord. Thank you for following my story, I look forward to the next chapter.
Happy Easter friends! Celebrate both the crucified and alive Jesus.
Press on, Rich
He said it so I don’t have too! God is Great!
Here is the latest directly from Rich:
This morning is the third surgery in 19 days. Left eye surgery is scheduled to begin at 7:00am at Mease Dunedin Hospital, Dr. Morgan, technically as an outpatient procedure. It should result in improved vision and better/tighter closing at night. They will also remove the staples from my neck!
God is teaching me a lot about submission, what He values most and trusting in Him alone.
Thankfully, my family and I have been blessed by generous support from our friends/family at Digital Lightbridge, church and throughout our community. Thank you seems inadequate, but thank you all! Your notes, calls, visits, food and flowers are a HUGE encouragement to the entire Hayes family. We’ll try to update again post-op and before radiation begins. Ironically, my surgery wants me to gain about 15lbs. I’ve lost 60lbs. intentionally. Ice cream, sweet tea, oatmeal cookies and sushi here I come. No rabbit food for awhile!
I’ll leave it at that… Press On!
Good morning! I got this yesterday from Lisa:
Today is the kind of weather that Rich loves lots of thunder,lightning and rain. Today has been a good day. Rich’s sister came for lunch and Rich was able to visit and eat with her before heading to bed. It’s a great day to nap, so he is resting well.
The pain meds have been working well as long as he doesn’t go more than 5 hours. Here’s where we need your prayer, nothing allowed after midnight tonight for tomorrow surgery. Yikes!
Tomorrow’s surgery is pretty cool in a thank God this exsists kind of way… Rich can not properly close his eye due to the nerve being removed. His ability to blink is permanately gone. During the day he puts artifical tears in every two hours and at night he currently has to put in an eye lube and tape it closed so he can go longer than 2 hours. Tomorrow he will have a gold weight placed in eyelid so he can close it at night- no more tape or lube, ahhh, that will have to feel great! He will also have a brow lift to open his vision up where the eye drooping is causing his vision to be blocked. The Dr. will use an exsisting eyebrow scar that Rich got when he was 15-God was working even then for this season. How great is that!
Isn’t it cool how God “Presses On” even when we don’t know it? Hmm…
Here is the latest update from Lisa:
Rich will be discharged soon. I can’t wait to get him home! He is still in a lot of pain and sleeping most of time however it should be manageable with the meds. We are so thankful for all of the calls,cards,visits, flowers and most importantly the prayers! Wow-you are all so wonderful! Rich will be having another surgery on Monday at Mease Dunedin. My plan is to get him home this afternoon and right back to sleep. He has to rest for Mondays surgery. Radiation has been put off an extra week due to how invasive this weeks surgery was and Rich has to gain about 15 lbs before it can start.
So thankful to be taking him home. We are going to have some excited boys!
God keeps answering prayers! Keep ’em coming while you continue to…
Went to see Rich today. He looks great considering all he has been through and doesn’t seem to be in too much pain. The hope is that he will be able to come home today. Keep praying!
Lisa said that the Dr.’s removed all lymph nodes on the left side of Rich’s neck as well as any muscle tissue that looked like it had been infected with the cancer – down to the microscopic level. They are all pretty confident that they got as much as humanly possible. Anything that is left they will eliminate through radiation which is expected to begin next week. Radiation normally does not produce any side effects but in this case, there will be some because the cancer is located in the neck/head region. There will be 40 radiation treatments. After the first 20 are finished, Rich will have a PET scan to see if there is any remaining cancer. If there is, they will also begin chemotherapy at that time.
All in all – everything right now is looking positive. Keep praying!
Again – Thank you to everyone for your comments. They are very encouraging words to Rich and Lisa. It is very reassuring to them to know that you are all on their side (not that you wouldn’t be) and that you are interceding with our Heavenly Father on their behalf.
We can’t wait until Rich can do his own blog entries and say…